U conference brings muscular dystrophy families together


On Nov. 2, 2019, the Utah Program for Inherited Neuromuscular Disorders (UPIN) welcomes researchers, clinicians, patients and families living with muscular dystrophy to the 4th annual UPIN Family Conference.

Since 2015, UPIN has hosted the conference to bring together leading researchers, clinicians, and families living with muscular dystrophy. Muscular dystrophy refers to a group of more than 43 neuromuscular diseases characterized by muscle weakness and muscle wasting. The event will feature a wide variety of speakers, family-led discussions, a resource fair and more. The keynote speaker is Chris Jones, father and founder of Mitchell’s Journey.

Events are all centered around the goals of expanding the research network, encouraging collaboration among care providers and their patients and increasing families’ engagement with one another. The event is open to all, including both adult and pediatric members of the neuromuscular disorder community.

The UPIN Family Conference will be held on Nov. 2 from 10 a.m. to 3:30 p.m. at the Primary Children’s Hospital Outpatient Services Building. Lunch and a light snack will be provided.

Register here to attend the conference. Contact Gabrielle Palombaro with any questions at 801-585-9717 or gabrielle.palombaro@hsc.utah.edu.